Birgitta Johansson – Caring sciences in oncology care
Research in the group focuses on studying how cancer patients feel during and after therapy, and how they have experienced the therapy and care. We also aim to find ways to improve treatment results, reduce toxicity and adverse effects, and improve patients’ quality of life.
![The text help written on a blackborad with a hand pointing at it](/images/18.f55610e190497b5861716a1/1720423270764/help.jpg)
Each year approximately 60 000 people in Sweden receive a cancer diagnosis. During cancer therapy patients suffer from physical side effects and at the same time the disease often causes psychosocial effects such as anxiety and depression. Informal caregivers (partners, other family members or friends) are also at risk for a decreasing health due to the cancer disease.
Our projects include randomized controlled trials where we evaluate the effects of internet-based support on anxiety, depression and health related quality of life in patients and informal caregivers and on informal caregivers’ preparedness to care for a person with cancer.
Publications
Part of The FASEB Journal, 2024
Part of BMC Cancer, 2024
- DOI for The effect of internet-administered support (carer eSupport) on preparedness for caregiving in informal caregivers of patients with head and neck cancer compared with support as usual: a study protocol for a randomized controlled trial
- Download full text (pdf) of The effect of internet-administered support (carer eSupport) on preparedness for caregiving in informal caregivers of patients with head and neck cancer compared with support as usual: a study protocol for a randomized controlled trial
Part of Acta Oncologica, p. 414-421, 2023
- DOI for Cost-effectiveness of different exercise intensities during oncological treatment in the Phys-Can RCT
- Download full text (pdf) of Cost-effectiveness of different exercise intensities during oncological treatment in the Phys-Can RCT
Part of BMC Cancer, 2023
- DOI for Evaluating patient reported outcomes and experiences in a novel proton beam clinic - challenges, activities, and outcomes of the ProtonCare project
- Download full text (pdf) of Evaluating patient reported outcomes and experiences in a novel proton beam clinic - challenges, activities, and outcomes of the ProtonCare project
Part of Internet Interventions, 2023
- DOI for Long-term effects on depression and anxiety of an internet-based stepped care intervention for patients with cancer and symptoms of depression and anxiety: The U-CARE AdultCan trial
- Download full text (pdf) of Long-term effects on depression and anxiety of an internet-based stepped care intervention for patients with cancer and symptoms of depression and anxiety: The U-CARE AdultCan trial
Part of JMIR Cancer, 2023
- DOI for Positive Design Framework for Carer-eSupport: A Qualitative Study to Support Informal Caregivers of Patients with Head and Neck Cancer in Sweden
- Download full text (pdf) of Positive Design Framework for Carer-eSupport: A Qualitative Study to Support Informal Caregivers of Patients with Head and Neck Cancer in Sweden
Part of European Journal of Oncology Nursing, 2023
- DOI for Understanding the challenges and need for support of informal caregivers to individuals with head and neck cancer - A basis for developing internet-based support
- Download full text (pdf) of Understanding the challenges and need for support of informal caregivers to individuals with head and neck cancer - A basis for developing internet-based support
Part of Upsala Journal of Medical Sciences, 2022
- DOI for Associations between dietary advice on modified fibre and lactose intakes and nutrient intakes in men with prostate cancer undergoing radiotherapy
- Download full text (pdf) of Associations between dietary advice on modified fibre and lactose intakes and nutrient intakes in men with prostate cancer undergoing radiotherapy
Designing for Human Well-Being: A Case Study with Informal Caregivers of Individuals with Cancer
Part of Studies in Health Technology and Informatics, p. 214-218, 2022
- DOI for Designing for Human Well-Being: A Case Study with Informal Caregivers of Individuals with Cancer
- Download full text (pdf) of Designing for Human Well-Being: A Case Study with Informal Caregivers of Individuals with Cancer
Part of Primary Health Care Research and Development, 2022
- DOI for How persons with systemic mastocytosis describe the time between symptom onset and receiving diagnosis
- Download full text (pdf) of How persons with systemic mastocytosis describe the time between symptom onset and receiving diagnosis
Part of BMJ Open, 2022
- DOI for Internet-based support for informal caregivers to individuals with head and neck cancer (Carer eSupport): a study protocol for the development and feasibility testing of a complex online intervention
- Download full text (pdf) of Internet-based support for informal caregivers to individuals with head and neck cancer (Carer eSupport): a study protocol for the development and feasibility testing of a complex online intervention
Part of Acta Oncologica, p. 888-896, 2022
- DOI for Long-term resource utilisation and associated costs of exercise during (neo)adjuvant oncological treatment: the Phys-Can project
- Download full text (pdf) of Long-term resource utilisation and associated costs of exercise during (neo)adjuvant oncological treatment: the Phys-Can project
Part of Supportive Care in Cancer, p. 5949-5963, 2022
- DOI for Short- and long-term effect of high versus low-to-moderate intensity exercise to optimise health-related quality of life after oncological treatment-results from the Phys-Can project
- Download full text (pdf) of Short- and long-term effect of high versus low-to-moderate intensity exercise to optimise health-related quality of life after oncological treatment-results from the Phys-Can project
Part of Physiotherapy Theory and Practice, p. 141-150, 2022
- DOI for The Phys-Can study: meaningful and challenging - supervising physical exercise in a community-based setting for persons undergoing curative oncological treatment
- Download full text (pdf) of The Phys-Can study: meaningful and challenging - supervising physical exercise in a community-based setting for persons undergoing curative oncological treatment
Part of Journal of Medical Internet Research, 2021
- DOI for Commencement of and Retention in Web-Based Interventions and Response to Prompts and Reminders: Longitudinal Observational Study Based on Two Randomized Controlled Trials
- Download full text (pdf) of Commencement of and Retention in Web-Based Interventions and Response to Prompts and Reminders: Longitudinal Observational Study Based on Two Randomized Controlled Trials
Part of Scandinavian Journal of Caring Sciences, p. 796-804, 2021
- DOI for Development and initial psychometric evaluation of a radiotherapy-related symptom assessment tool, based on data from patients with brain tumours undergoing proton beam therapy
- Download full text (pdf) of Development and initial psychometric evaluation of a radiotherapy-related symptom assessment tool, based on data from patients with brain tumours undergoing proton beam therapy
Part of Scandinavian Journal of Medicine and Science in Sports, p. 1144-1159, 2021
- DOI for Does exercise intensity matter for fatigue during (neo)adjuvant cancer treatment?: The PhysCan randomized clinical trial
- Download full text (pdf) of Does exercise intensity matter for fatigue during (neo)adjuvant cancer treatment?: The PhysCan randomized clinical trial
Part of Medicine, 2021
- DOI for Effects of heavy-load resistance training during (neo-)adjuvant chemotherapy on muscle cellular outcomes in women with breast cancer
- Download full text (pdf) of Effects of heavy-load resistance training during (neo-)adjuvant chemotherapy on muscle cellular outcomes in women with breast cancer
Part of Acta Oncologica, p. 96-105, 2021
Part of Psycho-Oncology, p. 2012-2018, 2020
- DOI for Cocreated internet-based stepped care for individuals with cancer and concurrent symptoms of anxiety and depression: Results from the U-CARE AdultCan randomized controlled trial
- Download full text (pdf) of Cocreated internet-based stepped care for individuals with cancer and concurrent symptoms of anxiety and depression: Results from the U-CARE AdultCan randomized controlled trial
Part of Clinical Psychology Review, 2020
Part of Supportive Care in Cancer, p. 3331-3342, 2020
- DOI for Effects of a nutrition intervention on acute and late bowel symptoms and health-related quality of life up to 24 months post radiotherapy in patients with prostate cancer: a multicentre randomised controlled trial.
- Download full text (pdf) of Effects of a nutrition intervention on acute and late bowel symptoms and health-related quality of life up to 24 months post radiotherapy in patients with prostate cancer: a multicentre randomised controlled trial.
Part of European Journal of Oncology Nursing, 2020
- DOI for Exercise: A positive feature on functioning in daily life during cancer treatment — Experiences from the Phys-Can study
- Download full text (pdf) of Exercise: A positive feature on functioning in daily life during cancer treatment — Experiences from the Phys-Can study
Part of Nutrition & Dietetics, p. 223-230, 2020
Part of Journal of Medical Internet Research, 2020
- DOI for Experiences of Internet-Based Stepped Care in Individuals With Cancer and Concurrent Symptoms of Anxiety and Depression: Qualitative Exploration Conducted Alongside the U-CARE AdultCan Randomized Controlled Trial
- Download full text (pdf) of Experiences of Internet-Based Stepped Care in Individuals With Cancer and Concurrent Symptoms of Anxiety and Depression: Qualitative Exploration Conducted Alongside the U-CARE AdultCan Randomized Controlled Trial
Part of Nursing open, p. 1157-1163, 2020
- DOI for Managing an altered social context—Patients experiences of staying away from home while undergoing proton beam therapy
- Download full text (pdf) of Managing an altered social context—Patients experiences of staying away from home while undergoing proton beam therapy
Part of Psycho-Oncology, p. 1772-1785, 2020
Patients' perspective in the context of proton beam therapy: summary of a Nordic workshop
Part of Acta Oncologica, p. 1139-1144, 2020
- DOI for Patients' perspective in the context of proton beam therapy: summary of a Nordic workshop
- Download full text (pdf) of Patients' perspective in the context of proton beam therapy: summary of a Nordic workshop
Part of Cancer Nursing, 2020
- DOI for The Art of Living With Symptoms: A Qualitative Study Among Patients With Primary Brain Tumors Receiving Proton Beam Therapy
- Download full text (pdf) of The Art of Living With Symptoms: A Qualitative Study Among Patients With Primary Brain Tumors Receiving Proton Beam Therapy
Part of Journal of Medical Internet Research, 2020
- DOI for User Experiences of an Internet-Based Stepped-Care Intervention for Individuals With Cancer and Concurrent Symptoms of Anxiety or Depression (the U-CARE AdultCan Trial): Qualitative Study
- Download full text (pdf) of User Experiences of an Internet-Based Stepped-Care Intervention for Individuals With Cancer and Concurrent Symptoms of Anxiety or Depression (the U-CARE AdultCan Trial): Qualitative Study
Part of Supportive Care in Cancer, p. 2679-2691, 2019
- DOI for Evaluation of quality of care in relation to health-related quality of life of patients diagnosed with brain tumor: a novel clinic for proton beam therapy
- Download full text (pdf) of Evaluation of quality of care in relation to health-related quality of life of patients diagnosed with brain tumor: a novel clinic for proton beam therapy
Part of Journal of Medical Internet Research, 2019
- DOI for Identification of Anxiety and Depression Symptoms in Patients With Cancer: Comparison Between Short and Long Web-Based Questionnaires
- Download full text (pdf) of Identification of Anxiety and Depression Symptoms in Patients With Cancer: Comparison Between Short and Long Web-Based Questionnaires
Part of Journal of Nuclear Medicine Technology, p. 36-46, 2019
Symptom Clusters in Patients With Brain Tumors Undergoing Proton Beam Therapy.
Part of Oncology Nursing Forum, p. 349-363, 2019
Part of Psycho-Oncology, p. 1150-1161, 2018
Part of European Journal of Nuclear Medicine and Molecular Imaging, 2018
Part of BMC Cancer, 2017
- DOI for Design of a randomized controlled trial of physical training and cancer (Phys-Can) - the impact of exercise intensity on cancer related fatigue, quality of life and disease outcome
- Download full text (pdf) of Design of a randomized controlled trial of physical training and cancer (Phys-Can) - the impact of exercise intensity on cancer related fatigue, quality of life and disease outcome
Part of Acta Oncologica, p. 1094-1102, 2017
Exercise during and after curative oncological treatment: a mapping review
Part of Physical Therapy Reviews, p. 103-115, 2017
Part of Journal of Medical Internet Research, 2017
- DOI for Fifteen Challenges in Establishing a Multidisciplinary Research Program on eHealth Research in a University Setting: A Case Study
- Download full text (pdf) of Fifteen Challenges in Establishing a Multidisciplinary Research Program on eHealth Research in a University Setting: A Case Study
Part of Journal of Medical Internet Research, 2017
- DOI for Health-Related Internet Use in People With Cancer: Results From a Cross-Sectional Study in Two Outpatient Clinics in Sweden
- Download full text (pdf) of Health-Related Internet Use in People With Cancer: Results From a Cross-Sectional Study in Two Outpatient Clinics in Sweden
Part of European Journal of Oncology Nursing, p. 85-90, 2017
Part of Cancer Nursing, 2017
- DOI for The development of a Nurse-led Internet-based Learning and Self-care program for cancer patients with symptoms of anxiety and depression: a part of U-CARE
- Download full text (pdf) of The development of a Nurse-led Internet-based Learning and Self-care program for cancer patients with symptoms of anxiety and depression: a part of U-CARE
Part of Journal of Nuclear Medicine Technology, p. 21-25, 2016
Part of Cancer Nursing, 2016
Patient experience of 18F-FDG-PET/CT in a mask fixation
Part of European Journal of Nuclear Medicine and Molecular Imaging, 2016
Perceived barriers to and facilitators of being physically active during adjuvant cancer treatment
Part of Patient Education and Counseling, p. 1220-1226, 2016
Part of Supportive Care in Cancer, p. 4017-4023, 2016
Part of Supportive Care in Cancer, p. 2965-2972, 2015
Part of Journal of Medical Internet Research, 2015
- DOI for Measuring Use of Health-Related Support on the Internet: Development of the Health Online Support Questionnaire (HOSQ)
- Download full text (pdf) of Measuring Use of Health-Related Support on the Internet: Development of the Health Online Support Questionnaire (HOSQ)
Patient Experience of an 18F-FDG-PET/CT Examination: Need for Improvements in Patient Care
Part of Journal of Radiology Nursing, p. 100-108, 2015
Part of Acta Oncologica, p. 510-520, 2014
Part of Acta Oncologica, p. 368-377, 2014
Part of Psycho-Oncology, p. 251-258, 2014
Part of Radiotherapy and Oncology, p. 240-247, 2014
Part of Journal of Cancer Education, p. 278-283, 2014
Part of Breast, p. 844-851, 2014
Part of Acta Oncologica, p. 118-127, 2013
Part of Psycho-Oncology, p. 2321-2331, 2013
Part of European Journal of Cancer, 2013
Part of BMC Cancer, p. 414, 2013
- DOI for Internet-based stepped care with interactive support and cognitive behavioral therapy for reduction of anxiety and depressive symptoms in cancer: a clinical trial protocol
- Download full text (pdf) of Internet-based stepped care with interactive support and cognitive behavioral therapy for reduction of anxiety and depressive symptoms in cancer: a clinical trial protocol
Part of European Journal of Oncology Nursing, p. 625-631, 2013
Change in working time in a population-based cohort of patients with breast cancer
Part of Journal of Clinical Oncology, p. 2853-2860, 2012
Part of Radiotherapy and Oncology, p. 333-340, 2012
Evaluation of predictive markers for patients with advanced colorectal cancer
Part of Acta Oncologica, p. 849-859, 2012
Part of European Journal of Cancer Care, p. 642-649, 2012
2012
Health-related quality of life among women with breast cancer: a population-based study
Part of Acta Oncologica, p. 1015-1026, 2011
Part of Medical Oncology, p. 65-72, 2010
Part of Oncology Reports, p. 1645-1652, 2010
Part of Acta Oncologica, p. 163-165, 2010
Evidence-based practice: the importance of education and leadership
Part of Journal of Nursing Management, p. 70-77, 2010
Part of Supportive Care in Cancer, p. 1377-1384, 2010
Part of British Journal of Cancer, p. 1975-1983, 2008
Part of Cancer Nursing, 2007
Determinants of cancer patients' utilization of hospital care within two years after diagnosis.
Part of Acta Oncol, p. 536-44, 2004
Part of Läkartidningen, p. 1524-1531, 2003
A randomized study of nutritional support in patients with colorectal and gastric cancer
Part of Nutrition and Cancer, p. 48-58, 2002
Part of Läkartidningen, p. 771-773, 2002
Part of European Journal of Cancer, p. 2161-2168, 2001
Part of Scandinavian Journal of Primary Health Care, p. 143-148, 2000
Intensified primary cancer care: A randomised study on home care nurse contacts
Part of Journal of Advanced Nursing, p. 1137-1146, 1999