NORDeHEALTH

NORDeHEALTH aims to implemented to give patients online access to their electronic health records (PAEHR) and increase self-management and transparencyin healthcare. The goal is to enable further digitalization of the public health sector by providing concrete feedback to the national authorities in the respective countries, provide guidelines and frameworks for design, implementation and evaluation of personal eHealthservices (PeHS).

More specifically, NORDeHEALTH aims to

1. Study the current implementation and adoption of PeHS in the Nordic countries to create new knowledge and in-depthunderstanding of challenges and opportunities
2. Develop evidence-basede valuation frameworks and guidelines to help researchers and practitioners within and beyond the Nordic countries evaluate PeHS and their acceptability, and support successful implementation and adoption of PeHS
3. Explore factors around co-design of PeHS through innovation projects focusing on patient-generated data and tools for patients’ co-creation of the medical record, as well as providing best practice guidelines

Personal eHealth, patient empowerment and self-management are topics that achieve a lot of attention internationally, and large resources are spent designing, developing and implementing such services globally. Yet, we still have no clear picture of how contextual factors (e.g. technical infrastructure, organization of healthcare, reimbursement models and population characteristics) will impact implementation, or how to take these factors into account when implementing.

The project brings together experiences and knowledge from studying PeHS and patients access to their medical records in the Nordic countries, with partners from Sweden, Norway, Finland, and Estonia, as well as in the US (through partnership with the OpenNotes research group). This joint effort will increase the empirical evidence and establish a theoretical framework to explain howimplementation of PeHS impact different patient groups and healthcare, and how we can best evaluate and compare results across contexts. This is essential in order to use our resources wisely and avoid failed implementations, but also to ensure that the benefits ofdigitalization can reach as many patients, family caregivers and healthcare professionals as possible.

Project members

• Uppsala University (Sweden)
• Örebro University (Sweden)
• Skövde University (Sweden)
• Tallinn University of Technology (Estonia)
• Aalto University (Finland)
• Karlstad University (Sweden)
• Norwegian Centre for E-health Research (Norway)
• OpenNotes (USA)